Background: The World Health Organization defines palliative care as encompassing the control of pain and other symptoms and psychological, social, and spiritual care. Most patients experiencing life-threatening illness want the medical team to address their spirituality. Nevertheless, the provision of spiritual care in everyday practice remains difficult. Health care providers face many obstacles, such as discomfort with the subject, inability to find the right words or a lack of specific training.
Aim: The overall aim of this thesis was to study spirituality in palliative home care from different perspectives. We aimed to answer the following questions: how do general practitioners (GPs) perceive their role in spiritual care (RQ1)? What are the key elements of spiritual care in palliative home care (RQ 2)? What are the key outcome measures for spiritual care in palliative home care (RQ 3)? What are GPs' views on the use of the FICA tool for spiritual history taking (RQ 4)? How do GPs, nurses, and their patients experience the ars moriendi model (AMM) as a tool for spiritual history taking (RQ 5)? What is the effect of structured spiritual history taking on the spiritual well-being of palliative patients (RQ 6)? What challenges need to be overcome to recruit patients with an incurable, life-threatening illness for research in home care (RQ7)?
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